The Minister has finally agreed to make Ampligen available to patients in Ireland. I am completely drained but feel a deep sense of relief that we actually forced this change. We must keep watching to ensure this rollout happens without any more delays.
May 12, 2016
Final supporters
There are thousands of people with M.E. (Myalgic Encephalomyelitis) in Ireland. At the very best, we receive only symptom management from our doctors, that's the best they can do for us. There is a drug, Ampligen (Rintatolimod), for the treatment of M.E.
Ampligen has been successfully trialled in the U.S.A. for the last two decades. Many M.E. patients have gone into FULL REMISSION with this drug.
We are asking the Minister For Health to make Ampligen available to us.
M.E. is an neurological illness as defined by the WHO (World Health Organisation). It affects all systems: neurological, immune, endocrine, gastrointestinal, musculoskeletal, etc. The symptoms can vary from mild, moderate, severe to very severe. It can be remitting/relapsing or progressive. Some people spend their days in a darkened room, unable to tolerate light or sound. Some are tube-fed. Others are mildly affected.
My name is Noreen Murphy. I have M.E. for over 29 years. Initially, I was very severe, then moderate for a number of years but have Severe M.E. for past few years.
Updates
Reached 1,000 supporters
February 23, 2016
February 22, 2016
The silence from the department remains heavy and frankly exhausting to deal with. I spend my mornings reading through the stories you leave here and they remind me that we cannot afford to look away or stop pushing despite how long this is taking.
February 21, 2016
The exhaustion is heavy today but seeing the signatures climb toward one thousand keeps me moving. If you can get this link to someone new, please do it now because we need that milestone to force them to listen.
Reached 100 supporters
February 11, 2016
513 Comments
M.E sufferer for 12 years. I badly need a drug that will allow me to "function" normally...just normally...is all I'm asking. To live a normal hard working life & be a good mother to my son. Instead I am in agony 24/7 & mostly bedbound. I exist.... I don't live!!
Having suffered with pain, fatigue & various other symptoms for over 20 yrs it is criminal for the HSE to leave us to rot. Under the law, we are entitled to treatment, yet in Ireland there is none...even proper testing is not available
Professor Austin Darragh, RIP, that wonderful compassionate doctor and advocate of sufferers of M.E., told me he was campaigning to have this drug made available in Ireland and at a reasonable cost. Best of luck with this petition.
Please make Ampligen available so CFS sufferers can get their lives back. Also when the Broken FDA here in the US see's your CFS sufferers getting better they rethink their stonewalling of Ampligen for the big pharma interest.
I was in one of the original drug trials for Ampligen in the USA. It helped take me from bedridden to simply mostly housebound - big difference. This is not a "cure", however, it can be a game-changer for so many if the powers that be will only allow it.
Make it AFFORDABLE and AVAILABLE IN THE U.S. TOO! Life is passing us by!!
M.E. sufferer for nine years now. Would like the opportunity to at least try this drug.
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The Minister has finally agreed to make Ampligen available to patients in Ireland. I am completely drained but feel a deep sense of relief that we actually forced this change. We must keep watching to ensure this rollout happens without any more delays.
May 12, 2016
Final supporters
There are thousands of people with M.E. (Myalgic Encephalomyelitis) in Ireland. At the very best, we receive only symptom management from our doctors, that's the best they can do for us. There is a drug, Ampligen (Rintatolimod), for the treatment of M.E.
Ampligen has been successfully trialled in the U.S.A. for the last two decades. Many M.E. patients have gone into FULL REMISSION with this drug.
We are asking the Minister For Health to make Ampligen available to us.
M.E. is an neurological illness as defined by the WHO (World Health Organisation). It affects all systems: neurological, immune, endocrine, gastrointestinal, musculoskeletal, etc. The symptoms can vary from mild, moderate, severe to very severe. It can be remitting/relapsing or progressive. Some people spend their days in a darkened room, unable to tolerate light or sound. Some are tube-fed. Others are mildly affected.
My name is Noreen Murphy. I have M.E. for over 29 years. Initially, I was very severe, then moderate for a number of years but have Severe M.E. for past few years.
Updates
Reached 1,000 supporters
February 23, 2016
February 22, 2016
The silence from the department remains heavy and frankly exhausting to deal with. I spend my mornings reading through the stories you leave here and they remind me that we cannot afford to look away or stop pushing despite how long this is taking.
February 21, 2016
The exhaustion is heavy today but seeing the signatures climb toward one thousand keeps me moving. If you can get this link to someone new, please do it now because we need that milestone to force them to listen.
Reached 100 supporters
February 11, 2016
513 Comments
My son has severe ME diagnosed by several Consultants. He is bedridden, Can hardly talk, and is cared for by my wife and I (pensioners) who wash him, feed him etc. Please bring Ampligen to Ireland to give him hope and potential life changing treatment.
M.E sufferer for 12 years. I badly need a drug that will allow me to "function" normally...just normally...is all I'm asking. To live a normal hard working life & be a good mother to my son. Instead I am in agony 24/7 & mostly bedbound. I exist.... I don't live!!
Having suffered with pain, fatigue & various other symptoms for over 20 yrs it is criminal for the HSE to leave us to rot. Under the law, we are entitled to treatment, yet in Ireland there is none...even proper testing is not available
Professor Austin Darragh, RIP, that wonderful compassionate doctor and advocate of sufferers of M.E., told me he was campaigning to have this drug made available in Ireland and at a reasonable cost. Best of luck with this petition.
Please make Ampligen available so CFS sufferers can get their lives back. Also when the Broken FDA here in the US see's your CFS sufferers getting better they rethink their stonewalling of Ampligen for the big pharma interest.
I was in one of the original drug trials for Ampligen in the USA. It helped take me from bedridden to simply mostly housebound - big difference. This is not a "cure", however, it can be a game-changer for so many if the powers that be will only allow it.
Make it AFFORDABLE and AVAILABLE IN THE U.S. TOO! Life is passing us by!!
M.E. sufferer for nine years now. Would like the opportunity to at least try this drug.
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My son has severe ME diagnosed by several Consultants. He is bedridden, Can hardly talk, and is cared for by my wife and I (pensioners) who wash him, feed him etc. Please bring Ampligen to Ireland to give him hope and potential life changing treatment.