Status: Closed — this petition is no longer accepting signatures.
Final supporters
My name is Tracey and I'm starting a campaign to
raise awareness of something called lip-tie. It’s a condition that lots
of babies are born with (10%-15% of the population) and can affect jaw and dental development, breathing, chewing,
swallowing and digestion. Tongue and/or lip ties are also associated
with reflux, which can cause significant pain for baby and may result in
the need for medication.
It’s as it sounds, their lip is ‘tied’ to their gums by an extra bit of
skin – the degree of tie can vary – sometimes it can cause no problem at all, and other times can be more serious.
The
reason I am doing this is because I have discovered, completely by
accident, our precious Olivia has it. It is not checked for at birth and
in fact health visitors and midwives don’t seem to even have heard of
it.
Due to her lip-tie I was forced to combination feed after five days of breast feeding as the pain I encountered was beyond my limit . As a new mother I was very upset about it and felt like a failure who couldn’t provide for my own baby. Little did I know that it wasn’t me at all.
Since
finding out myself and posting on forums about it, other Mums have
discovered their little ones have it too, and indeed now know why there
were initial issues with feeding.
My aim is for all babies to be checked at birth for lip tie and for the correct guidance given regarding feeding issues and the possibility of treatment where necessary.
Also for anyone who has a baby in the future to be aware of its
existence so they can check themselves and be aware of its potential
problems.
We need 10,000 signatures to get a response from the NHS so please ask as many friends and family members to sign our petition as possible, even if they are not directly affected by this, they may benefit from this one day. About 40 years ago it was semi routine to snip a baby's frenulum as part of the post birth care. With the rise in bottle feeding in the 1970's the practice fell out of favor and professionals lost the ability to detect tongue ties. LETS GET IT BACK.
EDP and evening news article link - http://www.edp24.co.uk/news/health/norwich_couple_s_bid_to_raise_awareness_of_lip_tie_condition_1_3427568
More like this
Tongue-Tie division service on the NHS in Cambridgeshire
Coats Disease Awareness
Updates
April 1, 2014
I am still honestly stunned by how many of you have shared your own stories about this issue. It turns out so many families have been struggling in silence just like we were. Your experiences are the true force driving this forward because I certainly never anticipated this kind of response.
15 Comments
my son has one luckily caught at a week and a half and is getting released at 4 weeks
my son to has this and is now 3 its terrible to deal with hurts him and this should be looked for at birth
My son has an upper lip tie and I never knew it until he was 11 months old. It explains so much for his problems we have had. He always threw up after bottles and had gas and I had to give up on breastfeeding because he couldn't latch because of it. If I'd of known of this at birth I couldve breastfed him like I desired to!
my daughter has a lip tie which has been missed only reason I know about it is by doing research myself. My daughter is now 2 years old and have to make a doctors appointment to see what can be done! More awareness is needed and baby's should be checked before mother and baby leave the hospital
I think it is fantastic to raise awareness and I really think it is important for it to be routinely checked at birth to save further complications for mother and baby. It's a stressful time with a new baby anyway and the added stress of feeding difficulties could be eliminated in so many cases if this simple check was made. Lets hope the NHS listen!
My baby girl is lip tied
Self diagnosed at 4 months old!!
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Status: Closed — this petition is no longer accepting signatures.
Final supporters
My name is Tracey and I'm starting a campaign to
raise awareness of something called lip-tie. It’s a condition that lots
of babies are born with (10%-15% of the population) and can affect jaw and dental development, breathing, chewing,
swallowing and digestion. Tongue and/or lip ties are also associated
with reflux, which can cause significant pain for baby and may result in
the need for medication.
It’s as it sounds, their lip is ‘tied’ to their gums by an extra bit of
skin – the degree of tie can vary – sometimes it can cause no problem at all, and other times can be more serious.
The
reason I am doing this is because I have discovered, completely by
accident, our precious Olivia has it. It is not checked for at birth and
in fact health visitors and midwives don’t seem to even have heard of
it.
Due to her lip-tie I was forced to combination feed after five days of breast feeding as the pain I encountered was beyond my limit . As a new mother I was very upset about it and felt like a failure who couldn’t provide for my own baby. Little did I know that it wasn’t me at all.
Since
finding out myself and posting on forums about it, other Mums have
discovered their little ones have it too, and indeed now know why there
were initial issues with feeding.
My aim is for all babies to be checked at birth for lip tie and for the correct guidance given regarding feeding issues and the possibility of treatment where necessary.
Also for anyone who has a baby in the future to be aware of its
existence so they can check themselves and be aware of its potential
problems.
We need 10,000 signatures to get a response from the NHS so please ask as many friends and family members to sign our petition as possible, even if they are not directly affected by this, they may benefit from this one day. About 40 years ago it was semi routine to snip a baby's frenulum as part of the post birth care. With the rise in bottle feeding in the 1970's the practice fell out of favor and professionals lost the ability to detect tongue ties. LETS GET IT BACK.
EDP and evening news article link - http://www.edp24.co.uk/news/health/norwich_couple_s_bid_to_raise_awareness_of_lip_tie_condition_1_3427568
Updates
April 1, 2014
I am still honestly stunned by how many of you have shared your own stories about this issue. It turns out so many families have been struggling in silence just like we were. Your experiences are the true force driving this forward because I certainly never anticipated this kind of response.
15 Comments
This is great that you are raising awareness and hopefully going to make changes from this petition. I was totally unaware of my daughter's lip tie until yesterday,I only saw it whilst looking at her teething gums. Now I know it was no fault of my own that breastfeeding was a disaster. It's hard to believe that this isn't checked for in the days after birth.
my son has one luckily caught at a week and a half and is getting released at 4 weeks
my son to has this and is now 3 its terrible to deal with hurts him and this should be looked for at birth
My son has an upper lip tie and I never knew it until he was 11 months old. It explains so much for his problems we have had. He always threw up after bottles and had gas and I had to give up on breastfeeding because he couldn't latch because of it. If I'd of known of this at birth I couldve breastfed him like I desired to!
my daughter has a lip tie which has been missed only reason I know about it is by doing research myself. My daughter is now 2 years old and have to make a doctors appointment to see what can be done! More awareness is needed and baby's should be checked before mother and baby leave the hospital
I think it is fantastic to raise awareness and I really think it is important for it to be routinely checked at birth to save further complications for mother and baby. It's a stressful time with a new baby anyway and the added stress of feeding difficulties could be eliminated in so many cases if this simple check was made. Lets hope the NHS listen!
My baby girl is lip tied
Self diagnosed at 4 months old!!
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This is great that you are raising awareness and hopefully going to make changes from this petition. I was totally unaware of my daughter's lip tie until yesterday,I only saw it whilst looking at her teething gums. Now I know it was no fault of my own that breastfeeding was a disaster. It's hard to believe that this isn't checked for in the days after birth.